Thursday, June 24, 2010


When you live your life with a chronic illness you often find yourself fighting battles of different intensities from one day to the next. A lot of “healthy” people often assume that it is the big battles that are the hardest – the long hospitalizations, the flare-ups, surgeries – yet those fights can be relatively easy. In big battles you end up putting all your energy into trying to survive and you know the cost of defeat from the beginning. I find that it is the little battles I struggle most with – day to day living with pain, fatigue, taking new medications (with new side effects), limitations, sun exposure...the list can be quite endless if you spend too much time thinking about it.

My latest Sisyphean challenge involves a new medication that I have recently started taking because my kidneys are refusing to cooperate fully with their natural filtration process. I did give my kidneys a stern talking to, but unlike me they seem to be stuck in a perpetual teenaged state of defiance. This drug can encompass a host of side-effects, some of which I have already enjoyed in just a week of my daily dose. It started with headaches for the first four days (which have thankfully waned, as the drug brochure promised), and has now erupted into waves of extreme fatigue, frequent bruising, and some additional joint pain (honestly, one can never have enough joint pain). I am now also more prone to infection and contracting common ailments. The icing on this side effect cake is that I will have to take blood tests every few weeks to make sure the medication isn’t causing more extreme bodily harm.

Basically, I went from someone who was feeling relatively healthy, with lots of energy and hardly any pain to someone who is constantly tired and in pain – all to fix a small problem with my kidneys. I once again managed to push that rock all the way to the top of the hill, only to have it tumble back down. The Greeks never realized how much their mythical punishments mimicked real life. Or maybe they did. The only difference is I know this isn’t a punishment, it is just the way things are for anyone who fights a chronic illness.

So I fight this small battle like I have fought numerous ones before and no doubt will in the future. I will come out the victor, of that I am certain. And if I am lucky, I will have a moment to sit on my rock and listen to Orpheus’ beautiful song before the battle starts all over again.

Saturday, June 19, 2010


There's always a period of curious fear between the first sweet-smelling breeze and the time when the rain comes cracking down. ~Don Delillo

Monday, June 07, 2010


"Parting day Dies like the dolphin, whom each pang imbues With a new colour as it gasps away, The last still loveliest, till--'tis gone--and all is gray." ~Lord Byron

Saturday, June 05, 2010

Pictures of birds with that WTF? look on their faces

These pictures are really horrible to look at, but it sure puts the oil "spill" (deluge?) into perspective.

Thankfully, BP is taking some responsibility and is funding the rescue efforts of the International Bird Rescue Research Center. They accept donations, but are urging people to send donations to their local wildlife rehabilitation organizations. As the folks at the IBRRC put it, "A pelican is a pelican whether is it tangled in fishing tackle or oiled!"

This is not a post meant to criticize or shame big oil, or the use of oil, or anything like that. It is simply that the things humans do that destroy wildlife on such a large scale make me very sad. This planet belongs to all living things, and despite their (apparent) lack of sentience, animals and plants deserve to be here just as much as we do.

Tuesday, June 01, 2010

Proof that I married a geek

Somehow my husband managed to dig up his old Amiga from the depths of his parents' summer house, and to our surprise, it still worked! They just don't make 'em like they used to.