I've shared with the world the story of my life with lupus, and now I'm asking any Americans who read this blog to help. It will just take a few minutes to email your U.S. Representative asking him or her to cosponsor the Lupus REACH Amendments of 2997, H.R. 1192, which will significantly enhance efforts to understand and treat lupus. The Amendments will increase lupus research, support vital lupus epidemiology studies and data collection, and authorize programs to heighten public and professional awareness of lupus.
There are currently 40 cosponsors, but we need 395 more. So if your representative isn't on the following list, please write by using this simple form, and ask your representative to get on board with H.R. 1192. If you feel so inclined, I'd appreciate if you'd pass this information along to family and friends, but don't spam them!
Thank you for your support.
Current Cosponsors of the Lupus REACH Amendments of 2007 (H.R. 1192)
|
| Rep Lewis, John [GA-5] - 2/27/2007 Rep Rush, Bobby L. [IL-1] - 3/5/2007 |
7 comments:
OK I did it. I don't think there's much awareness of lupus, unfortunately. My son used to have a classmate whose mother had the disease, and that's how I learned about it. Maybe because the symptoms can be so variable, it's hard for those not directly affected to understand or comprehend. The woman I knew who had lupus sometimes appeared to be brimming with health, and at other times was disabled. Devastating. I hope the measure is successful. Good luck and good health to you.
Thank you so much Sandra. No, there isn't much awareness of the disease, at least, when I tell people I have lupus, most people need some kind of explanation. It is quite difficult to understand, because a big part of lupus is about pain, and pain is something you don't always see on the outside. It is very easy to fake feeling great with lupus, which I guess is a bonus in some circumstances.
Unfortunately, lupus has been left behind because other, more devastating illnesses understandably need more attention. But I hope we get to a point where there is more understanding of lupus (from doctors, too!) and more research to make our lives a bit easier.
I am not familiar with Lupus and went back to read your post about your lupus. I believe that any awareness to medical problems are effective in seeking more research in the areas needed. Our representative for Indiana is Mark E. Souder. I have gone to the site and forwarded my request on. I don't know if you want his address or not but I can get that to you or you can find it on a google search. Hopes this will help.
It's me again. I wanted to let you know that I went through my e mail address book and sent your information to my friends and relatives. E mail to Florida, California, Colorado, Utah, New Jersey and Indiana. Also sent a message to Cyndi in Italy. The more that know about this the more help on the way.Hope they all step up.
Thank you very much amerimom! It is going to take a lot of voices to get the cosponsors needed so every email makes a difference.
Thanks for sharing your story and brining this illness to light. I was going to send an email along, when I got an email from my. She was asking our family memebers (myself included) to be sure to write to our US Representatives asking him to cosponsor the Lugus Reach Amendments.
I will be happy to do so and will also mention this on my blog with link back to your (if that is ok with you).
Cyn
House : It's never lupus!
Post a Comment